Happy Easter Saturday?

Last week was a little emotional. My mind has been going crazy with worry for my little Austin. As you saw from my last post about the seizures. On Tuesday last week, Austin's nurse at Special Kids called me and he had a seizure. Nothing out of the ordinary except for this time I has number. Oxygen level numbers and heart rate numbers. Something I have never heard before. After talking to my therapist (aka best friend Jessica) I think this is where my emotions started. Knowing something in the back of your mind and actually hearing it are totally different. My heart is breaking because I cant fix this. Of course I call Dr.C and then call his Neurologist. Dr. O decided we would go up a little on his meds and do something we had talked about in the past. That would be referring us to a epilepsy specialist in Memphis TN and the LeBonheur Children's Hospital. I still had no idea what she was talking about really. Dr. O is off on Wednesday but said she would make sure she got the referral over and sometimes it can take a while to get it all set up. Okay, Now what? I get a call THURSDAY from Memphis saying that they received Austin's referral and had a cancellation for Monday. Well alright. We will be there. I am thinking this is just some kind of appointment or a long day of testing. Boy was wrong. The lady goes onto explain that this is a hospitalization and the study has 4 Epiletologist (???) that go to special schooling just for epilepsy and 14 Neurologist. We are assigned our own Epilepsy Neurologist let's just say and Austin's will have some test and around the clock EEG monitoring. Okay, Next. Then she tells me they will not know the treatment plan till he gets here and we see his EEG. They could want to wean him off of some of his meds and try different things. Basically we could be here a few days up to a week. :( Austin's seizure have been getting longer over the last few months. Nothing happened BAD so say that we had to come right away. It was just timing. Basically our Neurologist has tried several meds and doses and Austin needs some long term EEG monitoring while changing meds around to see what is going to work best for him. They told us we will leave when we have a good solution. Then she tell me when we get here he will need an MRI. Guess who can not have an MRI? Basically I spend Thursday and on the phone trying to get things in place. Therapy evaluations, finding a place to stay Sunday night since we had to be here at 5:30 Monday morning, and trying to find an MRI solution. His cochlear implant surgeon said it would be a best to come pick up his last MRI and CT pictures from Vandy and get a CT scan instead. So off to Vandy I went. As you can imagine I was a little overwhelmed. Scared about going by myself. Crying every time he has one of these dumb seizures. NOW, Something I was VERY sad about was Sunday was Easter and I had to leave at 10:00 am. (They got is in the fedex family house which was very nice) I love Easter, waking up early and the kids seeing Easter baskets, going to Church, then out to eat some yummy food. Not this year. We found the solution of going to the World Outreach Service at MTSU on SATURDAY. It was great. Great music and a great service.