Wednesday, January 15, 2014
Thursday, January 9, 2014
One thing that a special needs mom will worry herself to death about is their little boy loosing his first tooth. I can remember being so excited when Bryce lost his first tooth and couldn't wait to play tooth fairy. This time around all I could think about was, " Is Austin going to swollow it?" Or " is he going to chew on it?" We noticed Austin's bottom permanent tooth came in over Christmas. Of course the dentist was closed till after the new year. It was loose and getting looser but I just couldn't pull it. Well I guess that's what dad is for. I pretty much threatened his life if he hurt my baby. And I meant every word of that. So last night after a bath guess he came out with a bloody mouth????
Guess now we need to call the dentist and cancel that sedation for a while (they were probably going to go ahead and pull the tooth beside it also). This should buy us a little time but I will get their optinion about it first.
Just like any other kid, the tooth fairy came last night!!!!
Sunday, January 5, 2014
Almost a full week into 2014 and I am just getting over the flu.
I didn't make it till midnight, we didn't have our pajama dance party like I planned, and I didn't make any goals for the new year. 😢 I have been thinking about some things I would like for this year but haven't made them official by writing them out. Most of them involve family, friends, and bettering myself. Isn't that what we all want?
The husband and I did manage a little date night in the weekend. BWW, dinner, football, a beverage, and the movies. I haven't been to the movies in a long time but it's a perfect winter date night. Thanks to our great friends the Switzers for watching our babies for a few hours.
One thing I will update on is I am so happy to say that Marshall works a morning shift job now. It was a very tought last few years with him working a 12-9 pm schedule. We made it work but it wasn't fun or easy. I'm so very thankful that my husband has a great job and supports our family. However, it is extremely cold (I think the high is 9 tomorrow) and he works for the electric company. I'm sure he probably thinks I don't give it much thought since I am home and warm, but that's not true. I worry. I wonder if he is warm. I think about if he packed enough to eat. I think about what he is working on. I know the further he gets in his job the more I am going to worry. I love him and I worry. All the time. Prayers tonight and tomorrow that he stays safe and warm tomorrow.
I'll be thinking of those goals that I want to put out there but for tonight I'll leave you with a picture of our first little snow of 2014!
Friday, January 3, 2014
Well I didn't blog last year. I know I said I would, but I didn't. Oh well. It's a new year. Last year lots of exciting things happened and I'm sure eventually you will hear all about it. I have started out 2014 Facebook deactivated. Let's see how long that last. I do still have my Instagram and Twitter active. Lol. Let's all have a fab year and say bye to 2013.
My crazy family!
Tuesday, January 8, 2013
Well I must say 2012 was good to my family. You wouldn't know because I havent blogged about it. Oops. I always say I am going to try to do better. For 2013 I was to try to live as stress free as possible. Is that possible with 2 little boys and 1 that is differently abled? I doubt it but I am going to try to not sweat the small things and must stop taking on extra little projects. Sounds easy enough.. We shall see.
Tuesday, April 10, 2012
Not a whole lot happened today. Austin is officially diagnosed with myoclonic tonic seizures. He is sleeping a whole lot so isn't having as many seizures as he has on a typical day. Still about 10 or more a day here. We are coming off of 1 of his meds because it actually doesn't have high success rate with his type of seizure. The other 2 he is on are great for what he has. They want to start depakote but some blood work is required first that takes a few weeks to get back. So we talked about adding a night dose of zonegran till we know if he can take that drug. For now they are testing blood levels for the meds he is on to see what needs to be increases or decreased with the other 2. We talked some about VNS (vagus nerve stimulator) but we are not there yet and it doesn't always work. That is something we will let Dr. O decide if he ever needs it. Today to biggest thing that happened is the Neurologist sat down with me and showed me a few of Austin's MRI's and CT scan. She showed me things I have never been shown before. Where his brain is damaged, the wider dips throughout the brain, the enlarged lobes. She also explained that these seizures that he is having does not cause or has anything caused more brain damage since the scans he had at 6 months old. For now, more EEG monitoring, coming off 1 med, possibly starting another or going up on the other two. May know more tomorrow. Austin did get out of the bed today. Went to the play room twice in his walker. Oh, the Dr also said we will probably be here at least 2 more days. :( I guess I was hoping for a miracle by wishing to be here 2 nights.
Monday, April 9, 2012
The hospital here is about a 4 hour drive from home. I was also told we are not is a very good part of town so we stopped in Germantown for gas AND Starbucks!
The Fex Ex Family house was so nice and gated. hahaha. I will definitely have to send them a thank you card and donation. We had to be here at the hospital bright in early at 5:30 am. When we got here Austin had a CT scan with no sedation (He was a champ!), then we met several nurses, got his EEG put on, had a PT and OT consult, and slept a lot in between. I did get him to eat a little lunch. The food actually isn't too bad. Then this afternoon we met his Neurologist (Dr. Amy). We talked for about an hour and that is unheard of in a hospital. I am impressed. She had lots of questions but I had more. She had seen him seize on EEG and watched him on video that is in our room. He has had several today. Tonight we are going down on 1 med. We will see what is EEG down tomorrow. If no change we know we prob need to just come off of that one. If it is worse, that means that one is working. For Austin, seizure control (per Dr. Amy) would be maybe a few very short ones in the morning and possibly 1 or 2 randomly during the day that is very short. That probably sounds awful to some but great to me. Sometimes he would have 30 a day. Then we talked about VNS, Ketogenic Diet, and lots more. This doctor was so nice and asked if I had ever seen his MRIs, wanted to print them and show me tomorrow, wants to research why his muscle tone is so low (she was expecting him to be tight). Lots of info for 1 day. After she left the nurse came to stay with Austin so I could get his stuff out of the car. I brought his walker and some toys and got him OUT of that bed. He loved it. Well, I will post again soon. Prayers for Austin are always welcome appreciated.